I have never been a fan of rollercoasters - emotional, physical or the ones you find at amusement parks. I have always liked being the "purse" holder for my friends. Once Graham was transplanted, he had a weird fear of his lungs falling out or the wire that holds his ribcage together would be affected by the magnets (insert eye roll). So guess who got to ride most of the rides with our thrill seeking daughter!?!?!?! However, there was this one time that Jordan made Graham do the REALLY tall swings at Six Flags - Graham was so scared! Still one of my favorite stories :)
Graham has not been doing well since Photopheresis last Thursday and Friday. The trip to and from Dallas wears him out, but he normally has recuperated by Sunday. This has not happened this week. He is very tired and lethargic and has been bedridden all week. His breathing has become more shallow and any exertion causes his O2 Sats to drop into the 80s. Then there is the topic of food...he has 0 appetite and the thought of food makes him nauseous again. He knows he needs to eat and he will choke down as much food as he can, but not only is it still not enough, it makes him feel gross afterwards.
I am really craving a nice, long, cross country train ride across the flat plains. Yes, I would like some ups and understand there will be some downs, but this constant small uphill and steep down hill of a rollercoaster is giving us whiplash!
I am currently waiting for Dr. Casanova to return my call. Graham asked for yet another Miracle Pill, but I don't know if there will be one.
Understand the rollercoaster you're on after going through 4.5 years of dealing with Multiple Myeloma with my daddy. He was the comeback kid too. In ICU one week then doing fine the next. Unfortunately, the nature of so many illnesses. Add that to the unknown or what the docs don't warn you about. Feel for you! Grab moments of joy where you can as you are already doing. Will continue to pray for Graham, his docs' magic and you and Jordan!
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