Everything is still going well!!! Graham's primetime has been between noon and 5pm...Jordy and I get to miss it most days; however he is still able to talk and be happy. Not going to hide it - it's kind of awesome.
Photopheresis did kick his ass this week. It only makes sense that 2 days of having your blood sucked out of you that you would be spent. Graham began thinking that he was caving again...I kept reassuring him that rest will help, give it a day or 2. He slept most of Saturday, not eating much of anything. Then he started a fun, new habit...waking up several times during the night, walking around the house, and getting "stuck" without O2...I mean, he has ALL DAY LONG to get up and walk around, with PLENTY OF NON-SLEEPY help to save him during these stuck times, but NOOOOOOO. So my mature self just looks at him and begins to laugh. Kind of like the "I've fallen and I can't get up," but it's "I walked and I can't get back!"
Sunday seemed better...he ate some, tried to watch TV with Jordy, and made a plan to make Monday a better day. "Wake me up at 9, tomorrow will be good." Aye aye Cap'n! And then he went on 2 midnight adventures...SMH!
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