I have moved on to a second opinion at UT SOUTHWESTERN- AND I'M IN LOVE WITH MY NEW DOC AND FACILITY!!!! I KNOW I'M IN THE RIGHT PLACE!!!! I even geeked out and wore a UT shirt the first day - ha, DORK! I did learn that I am having partial blockage/blindness due to swelling - so at least I have some what of excuse for all those damn walls that keep getting in my way.
They met about me at their oncology board last Friday and all doctors agreed, Janet was misdiagnosed and she is actually at least a Grade 3 Glioblastoma....I go in for a biopsy of this new spot on Wednesday and they hope to have all past and current pathology reports done by that evening and a real plan in place to get this shit out of me by the end of the week. I am once again feeling hopeful....I even made a to do list (yes, with different sharpie colors) to give me something to look forward to! Now, if they want to suck a HUGe biopsy out to get as much of these Janet babies as possible...GO FOR IT! Because I am so ready. Crank up the radiation to burn her up; give me the chemo soldiers to fight her down, and now I'm taking pancreatic Enzymes like my idol aunt sweetie to give my body an even bigger fighting chance!!!! So TAKE THAT CANCER - you suck and don't stand a chance. I've got a precious little girl and AWESOME life to live.
In Mansfield, the first monday of the month is dedicated to those we love and support fighting some battle (cancer, or disease). Today was really hard for Jordy....As we picked out what she wanted to wear she chose a Gray( Brain Cancer) Rock CF (for Daddy) shirt and cried. "Why do BOTH my parents have to suffer? Why has God not healed you yet mommy? Why? I almost lost my words - I've been waiting for this, but as I have learned enough this year, you cannot prepare yourself for ANYTHING!
#colors for caring #rock cf |
I went back to my summarization of the Book of Job...God can't heal all of Satan's doings over night...but he can help prepare us and give us the right tools so that we can fight....we just have to be patient. So she wore her shirt with a proud and heavy heart...and 2 black eyes. She isn't all Graham....she struggles with walls too :) We hugged and made plans for when I'm better...SCOTLAND!
Again, we are so blessed to have so many amazing people in our life. Thank you...and thank you for allowing me to apologize every 5 seconds, because i do feel guilt...I know how hard it is to live a non sick normal life (that i dream of to do again) and then to add in help for my village - thank you. And thank you for those who skip over my temper tantrums and tell me like it is - I NEED THAT TOO!!! Favorite words this week: You are over reacting to 8 year old soccer....haha, yes I was, and thank you...someone had to fill Graham's shoes on that one. But i agree and will go back to me on that one...she's having fun, that's all that matters!
praying hard for you both and sending much love.
ReplyDeleteSending strength and prayers...knowledge and wisdom to your Dr's. Xoxo
ReplyDeletePraying hard for you and J; I love y'all both, so much!
ReplyDeleteYou don't know me ... I went to law school with Susan but I want you to know ... I am praying for you. I just said a prayer for you that God watch over you in this absolutely difficult time. To help take pain away but help bring back the bubbly you. To rid you of the guilt you're feeling and to help you see the amazing Momma that you are! Prayers for you from the Lacefield family in College station. ❤️
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