Turns out that everyone was right - this place is great. All the nurses are very familiar with how to care for Graham and they do it all with ease. Graham no longer has to stress that someone is not doing their job. The hardest thing to get use to are our (or maybe just my) habits. Because we are on an "ICU" type floor - one wall is all windows facing the hallway. This leads to many awkward situations...I don't care, I live my life awkward. But I do know that the person who sits at the desk next to the sink gets uncomfortable and this makes me smile. I just wave as I brush my teeth, wash my face, fix my hair, wash my hands. I might just start doing the fun stuff like pick my teeth and nose too! For everything else, we can just close the curtain and have some privacy.
They are doing a great job with keeping him comfortable. After convincing OT and PT that he doesn't need them, respiratory that he might deny a treatment or 2 or 10, the dietician that he has his own eating habits and there is no forcing anything down him, and all the other odds and quirks of Graham - he's at a level of comfort that he has only ever been when at Baylor.
The frustrating aspect of their awesome work...it is giving Jordy and me false hope. His sleeping habits are showing that he isn't as well as he seems. He is gradually sleeping more and more, resting his hurting body. We checked his hemoglobin out of small hope that he was anemic again and a transfusion would fix it all; but no, it was 9.2, higher than it has been for awhile. So I just sit and read next to him, or crawl in his bed and sleep with him, and if he's up - I'll watch any sports he wants to watch. I even look up when he tells me to see something (this is something that I have always loathed in our marriage - I REALLY don't care about most sports moves) but I am willing to do anything to hold on to our final moments together.
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