Numb...but not comfortably

With this latest ordeal, it is obvious to us that Graham needs a transplant.  It is no longer: live a shitty ass life but watch your daughter grow up VS take a chance on a transplant and get a physically happy life back.  Without transplant, Graham will be no longer.

So Graham put pressure on Dr. Rosenblatt for an answer from UT Southwestern.  Graham has been denied from a 2nd institution for a double lung transplant.

Graham is numb...yes, VERY upset, but he can't yell, he can't awkwardly laugh, he can't get upset...but he can get on a mission.  He is hell bent on finding an institution that will give him a chance to live.  And (verbally) Rosenblatt too.

I, on the other hand, am pissed.  How can someone say, "I am afraid to kill him" when they are killing him by not giving him this chance? I wonder if they think they might 'waste an organ' when I know personally they transplant 70+ year old patients.  Now, before you start thinking I am heartless - I AM SO GRATEFUL that they have given the chance and opportunity to transplant patients.  I believe there are so many people, no matter what age, that deserve it.  But if you are telling me that these lungs may be wasted because of his chances, but you will give these lungs to an older person whose body is ailing and not as strong - I don't understand.  Now, no one has given me this answer.  But I have been told that I infer, or read between the lines, really well.

I do not know what our future holds at this point, or what our next step will be.  I do know Graham has a clinic appointment with Dr. Rosenblatt on Wednesday and that he will be getting more than he expected when we arrive.  Fight for Graham is NOT a statement - it is our life right now. 

Public Service Announcement:  The more organ donors we have (do you really need them anymore after you are gone???) means more organs are available to those who need them and less pickiness the doctors have to give them.  Maybe, just maybe, if they see they have enough they will see an opportunity to take a chance on someone and learn - see it as a scientific experiment that might just give someone a 2nd (or 3rd in Graham's case) chance at a life they might have never known.  Did you know 22 people die everyday waiting on an organ? 

If you are able, please visit http://organdonor.gov/becomingdonor/index.html  it not only saves a life, it gives a life to those not transplanted.  Without it, Jordy would NEVER have been able to remember a life with her amazing father.